Sunday, May 16, 2010

May ASAN-NE Meeting

The May 2010 meeting for the Autistic Self-Advocacy Network, New England Chapter (ASAN-NE) will take place on Saturday, 22 May 2010 from noon-2pm in the Raya Stern Trustees room of the Watertown Free Public Library.

This meeting is free and open to the public. So we can get an accurate attendance estimate, please respond to asannewengland AT hotmail DOT com if you plan to attend or if you have any questions.

Monday, May 3, 2010

ASAN Update on Inter-Agency Autism Coordinating Committee (IACC) Appointment of Ari Ne’eman

The Autistic Self Advocacy Network applauds HHS Secretary Kathleen Sebelius' appointment of ASAN President Ari Ne'eman to the Inter-Agency Autism Coordinating Committee (IACC). The Interagency Autism Coordinating Committee (IACC) is a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism. ASAN has given regular public comment at the IACC in the past and looks forward to continuing to be an active part of the IACC process. To learn more about the IACC, go to

A news release has been posted on the Health & Human Services website:

Be Included in Autism Research

The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) believes in research WITH autistic adults, not just ABOUT autistic adults.

The AASPIRE Gateway Project is an online gateway to research that fulfills AASPIRE's mission to

* encourage the inclusion of autistic adults in matters which directly affect them;

* include autistic adults as equal partners in research about autism;

* answer research questions that are considered relevant by the autistic community;

* use research findings to effect positive change for people on the autistic spectrum.

The AASPIRE Gateway Project needs your help, whether or not you are on the autistic spectrum.

If you are at least 18 years old and have access to the Internet, you can participate in a series of continuing online research studies that help AASPIRE achieve its mission. Upcoming studies address topics such as healthcare, Internet use, and problem-solving.

To participate in the AASPIRE Gateway Project:

1. Register online for an AASPIRE Gateway account starting at

2. Take the online AASPIRE Gateway Survey. The survey takes about 20 minutes to complete.

3. You will be notified by email when new studies for which you are eligible become available.

Completing the survey entitles you to a 1 in 25 chance to win a $25 Amazon gift certificate.

If you would like to learn more about AASPIRE or the AASPIRE the Gateway Project, you can

Go to the Gateway home page at

Send an email to Dora Raymaker at dora AT aaspireproject DOT org.

Make a telephone call to Dr. Christina Nicolaidis at 1-503-494-9602.

OHSU IRB #3762; UW IRB# SE-2008-0749

Principal Investigators: Christina Nicolaidis, MD, MPH, Oregon Health & Science University

Morton Ann Gernsbacher, PhD, University of Wisconsin-Madison
Katherine McDonald, PhD, Portland State University
Dora Raymaker, Autistic Self-Advocacy Network